SILA: The Sarcoidosis CharityCharity
SILA: The Sarcoidosis Charity
240 Portobello Road
- 020 3389 7221
SILA was founded in 1997 and has been helping people with sarcoidosis ever since. All members of the Board have personal experience of sarcoidosis.
SILA is a charity funded solely from personal donations - of both time and money. Sarcoidosis is a rare disease and suffers from poor quality information, low levels of support and almost no research into finding a cure. SILA works to change that. Information and support is mostly done by volunteers allowing us to put the vast majority of funds into research.
WHAT IS SARCOIDOSIS?
The British Thoracic Society defines sarcoidosis as "a disease resulting in small nodules of inflammation and scarring (called granulomas) throughout the body. Sarcoidosis most commonly affects the lungs and skin but other organs can be affected."
SILA has three goals:
Information: Providing accurate and detailed information to people with sarcoidosis, their carers, and medical professionals.
Support: We provide emotional support for people with sarcoidosis and their carers by telephone, email and at our support groups in London and the West Midlands. You can also join our Facebook group.
Finding a Cure: SILA raises funds and invests them into focused medical research that works directly to finding a cure for Sarcoidosis.
Sarcoidosis is a rare disease so not a priority for others - so we have to make funding a cure happen. If you would like to support our work with a donation visit out JustGiving page.
All donations are much appreciated.